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December 7, 2012

Pirate Macy.

Once upon a time my sister Maddie adopted a dog named Macy.

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Macy was the apple of her mum's eye, an incredible host at holidays, and a generous snuggler.  Then... Pirate Macy came along.  

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Pirate Macy is an odd statue Maddie and her husband found at an antique store a few months ago that looks almost identical to their sweet Macy.  It was a no-brainer.  They had to have it. So they brought Pirate Macy home... and he/she quickly took on a life of its own. 

We were first introduced to Pirate Macy when he/she called to wish Sean a happy Father's Day last June.

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Since then, Pirate Macy has been busy.  Very busy.  This androgynous pup has been crunching the numbers, crafting away, brainstorming topics, and becoming quite the entrepreneur.  Stationary is its game and Pirate Macy is its name.  (Yes, I just wanted a rhyme there.) 

So, as if my sister Maddie couldn't be any cooler, she and her husband Burley have helped Pirate Macy's dreams come true and launched Pirate Macy the business.  

Go check out what this hilarious, disgruntled, crotchety ole pup has to say about the holidays... and then send someone you love a one of a kind Pirate Macy card.  Annnddd... if you want the real story on how this business got started (from the owner's point of view- and not the sister/aunt's observations... head over here to hear from Pirate Macy's mom: The one and only Mrs. Thriftary.)


Check out the store HERE. 

PS: Sean and I laughed so hard at some of these we are STILL saying the lines to each other.  PM's got one seriously dry sense of humor.

mae

December 3, 2012

Final Verdict

Abiella is doing MUCH, MUCH better.  Thank you so much for your kind words and prayers... They mean so much.

We are back at home.  Final verdict?  A small skin infection near her surgical site AND a stomach virus. The vomiting threw us all off because we were concerned it was related to her new G-Tube.  But x-rays, a cat-scan and a few nights in the hospital later we know the tube is working perfectly and the vomiting was due to a stomach virus.  Praise God!!!!

Now we're back home- taking things slowly...

Enjoying the fresh air... (70's in December? We'll take it.)

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Playing like a champ...

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And watching a LOT of Christmas specials...

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Time to relax... Praise God for healthy bellies, happy hearts, and a few nights of restful sleep.  This week we've got 7 doctor's appointments... (follow-up with the surgeon, more vaccines, yada yada yada) but I don't even care.  A healthy baby makes everything look like a walk in the park. We're happy, healthy, and home and that makes me one very happy mama.

(Thank you again for the prayers!) 

mae mae

November 27, 2012

Surgery-Thanksgiving-And Back in the Hospital...

The surgery.  One of the worst nights of my life.  I don’t even know where to begin.  Bottom line: the surgery went great… but the aftermath was a nightmare.

The day started out promising.  Abi couldn’t eat past 6:30 am, but she was doing fine.  Her surgery was scheduled for 2:30. We got the hospital at 12:30 and by 1:30 we were back in the pre-op area, separated from all the other patients by thin curtains. We waited and waited and waited. The surgery ahead of us ended up taking much longer than expected so Abi was on the pre-op bed for 2 hours longer than expected.  She was VERY hungry at this point, but still kicking and having a good time. 

At 4:30 they finally took her back and the real wait began.  Sidenote: doesn’t matter how easy the surgery is supposed to be, seeing your child look at you with a confused look on her face while being carried away by a bunch of strangers is parental torture.  

At 5:30, they call us in the back, the surgeon meets with us and tells us she did great and I finally begin breathing again.  We go back into the main lobby and wait for the recovery team to come get us.  I call Sean and my dad and tell them the good news and wait….

And wait…

And wait…

Eventually we were the only ones left.

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Finally I see a nurse walk in and speak quietly to the assistant left in the room with us.  She whispers, “McConnell” with a worried look on her face.  My heart sinks.  The assistant points to us and I brace myself.  The woman came over and said, “She’s inconsolable.  We don’t THINK she’s in pain, but we’re not sure.  Is there anything you think might be the problem? Would you like to come hold her and try to calm her down?”  We immediately run to the back and as we’re walking past patients in beds with curtains for walls I hear Abi screaming.  I run up to her. She’s in the hospital bed, face swollen, closed eyes 4 times their normal size, wailing.  I pick her up and start speaking to her.  She calms down a little but continues to cry.  As I hold her, we begin the process of brainstorming:  Pain? = We give more pain meds.  Acid reflux? = We give Acid Reflux medication.  But nothing was helping.  Eventually I ask- “has anyone even seen her eyes open??” Nobody had.  It became obvious-she wasn’t even awake.   I felt the grip on my emotions start to weaken and as I realized something was really wrong I worked hard to hold her and not totally panic.  I’m the person who got her wisdom teeth ripped out of her gums WHILE AWAKE because I refused to be put under… I’m deathly afraid of anesthesia and now, my daughter (to the dismay of all medical professionals) wouldn’t WAKE UP.  BUT it was worse.  It wasn’t that she was just asleep, she was asleep (we think?) and screaming! 

We began considering the possibility of a condition called “emersion delirium” which can cause patients to react strangely when coming out of anesthesia.  The anesthesiologist came and told us she was screaming from the second she woke up… she didn’t know what was wrong but didn’t think it was pain… she left.  No problems solved.  Just gone.  Eventually the nurses came in and said they’d spoken with the doctors and they were going to give her a medicine for pain and emersion delirium- even though they didn’t think that’s what it was.  As the nurse went to give this medicine she discovered that the IV  was kinked.  She said, “Hmm… okay- well maybe it is pain b/c now we don’t know if any of the pain meds actually got to her… Not sure when this kink happened.”  Oh. Dear. Lord.  I could feel my spirit spinning.  As the minutes passed my mom held Abi and she eventually started to calm down.   The new meds seemed to be working… (Or perhaps the original pain meds were finally reaching her? Who knows.) However, despite a break in the screaming, she still hadn't opened her eyes.

I took the opportunity to go to the bathroom, call Sean, and ask him to start calling family and friends.  We needed prayer.  Big time.

I took a few deep breaths and walked back to our curtain.  When I walked in, my mom looked up at me and said, “Mary Susan.  Go get a nurse.” 

“Why?”

“Mary Susan.  Go get a nurse.”   I looked at Abi and I could tell she was fighting for air.  I ran out of the curtains looking for a doctor or a nurse.  I found them and I interrupted their conversation and told them frantically, “I need you NOW!”  They ran with me back to my mother and when they looked at Abi, the nurse said, “Get her on the table!”  She grabbed an oxygen mask and I watched as they tried to help my daughter breathe.  Abi looked like a fish out of water.  Her eyes were still closed but she was gasping for air and clearly not getting any.  The nurse said, “We normally don’t like parents to see this.  Are y’all okay?”  My mom nodded yes and I said, “No. I’m not okay.” And started bawling.  The nurse said, “Go sit in that rocking chair over there.  Go sit. We don’t want you to see this. It can be traumatic for parents.”  So I went.  I sat in the rocking chair and looked up to see a dozen other families, looking at me… Everyone’s curtains were wide open.  I crumpled in the rocking chair and started to bawl.  Before I knew it another nurse handed me a box of tissues, and a cup of apple juice.  She said, “Take all the time you need” and closed the curtain.  I call Sean.  I could barely get my words out.  “Abi can’t breathe.  They put her on the oxygen machine.  They told me to leave.  They can’t get her to wake up.”

Finally I gained the composure to go back.  At this point, the nurse had Abi on her side and she was breathing fine… but still on the machine.  The nurse told me that the last medicine they gave her must have been too much for her little system and it sedated her so much that her airway closed.  She said, the medicine would be wearing off shortly.  The second it wore off we knew it, because Abi started screaming.  Again.  We held her, we talked to her, we played her music.  She would scream and then stop and then start screaming again.  There were no answers.

The nurse told me they were considering taking her to the ICU.  She also told me some people were there to see me, and even though only 2 adults were allowed, they’d let them in if I was okay with it.  I wasn’t expecting anyone but I said, “Sure send them back.” It was my sweet father.  Sean had called him and he and my sister and step mom had rushed over right away.  It meant a lot.

EVENTUALLY-  Abi’s vitals were steady enough that despite the fact she hadn’t woken up yet, the nurses felt comfortable sending us to a room.  On our way out of the area Abi started to barely open her eyes.  I immediately put my face near her ear and began speaking to her.  For the next hour she would open her eyes a little, and then close them again.  She couldn’t keep them open for long.  BUT THEY WERE OPENING!!

For the rest of the night, she would sleep soundly and then suddenly start screaming.  Because of the surgery starting late, she couldn’t get any food for an entire 24 hours. I was certain she was painfully hungry.  Eventually, I climbed up into the crib with her and slept there.  By 8 am she FINALLY looked AWAKE.  She was clearly uncomfortable, but at least she was AWAKE!!!

Despite the anesthesia nightmare, Abi’s tube was working well and she was finally awake, so we were discharged in the late afternoon.  (Thank GOD!) Amazingly enough, this was the weekend my sister Maddie had planned to come meet Miss Abiella.  She had come all the way from Denver and was waiting at the house when we returned.  (Actually she stayed at the house the night we were in the hospital and took care of our dogs, went to the grocery and got fancy creamer (a big treat for me), and prepared the house for a cozy first few days of Miss Abi’s recovery.)  For the next few days Maddie, Abiella, and I recovered at the house, watched TV, went on walks, drank pots upon pots of coffee, and laughed… a lot.


Then Sunday morning Sean returned and we all went to our Framily Thanksgiving across the street that evening. 

A few days after that, James (Sean’s brother) drove up from Georgia and joined us for Thanksgiving...

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5 holiday movies, tons of food, and 2 days later, James hit the road and headed back home.

Today, we’re busy eating leftovers, decorating for Christmas, and helping Abiella venture through teething AND post-op tenderness… quite a double whammy.
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I wrote the above a few days ago but never posted.  Since then Abiella became increasingly sore and generally miserable.  On Sunday night we noticed a hard spot near her incision site. We immediately suspected infection.  We called the nurse and she told us to wait until morning and then go see the surgeon.  That’s what we did.  The surgeon felt the site could be infected, but that it didn’t look bad enough to know for sure. Since the surgeon felt it was no big deal, I told Sean to go ahead and leave town as scheduled for work, and that I’d start Abi on the antibiotics prescribed by the surgeon.  My super mom had also offered to come down and help me.  So by 3 o’clock Sean was on a plane out of town, by 5pm I was giving Abi antibiotics, and I thought things would slow down.  But,  Abi continued to feel worse and worse.  By 8pm she started vomiting. A lot. Her belly looked completely distended and the hard spot had grown substantially. I freaked out, considering she had never vomited before and she seemed SO MISERABLE.  We immediately loaded her up (after I called 911 and asked for an ambulance and then quickly decided against it… new parent syndrome?)  And by 9 o’clock we were in the ER waiting with about 50 other families.  By midnight we were in our own room in the ER and 21 hours and 37 minutes later we’re still here.

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In the wee hours of the morning we got 2 x-rays done, both of which came back normal. They started her on IV antibiotics and by midday today she began throwing up again.  A lot.  BUT after she was done, she immediately went back to her hold self. Finally.  Smiling, kicking, wide awake, looking around, less tender…Now we’re waiting it out…

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We just started small amounts of pedialyte through her tube now... praying it goes well and stays down... 

November 14, 2012

Kiss, Surgery, and Midland- Kurgerland?

Don't ask about the blog title... clearly I'm tired.  However, thanks to my wonderful mother, I was able to take a 2 hour nap yesterday AND I've been able to get decent amounts of sleep the past two nights!!! Woohoo!!!  So here's the the anatomy of the title:

Kiss: A song my husband wrote, called "Kiss" is going to be performed on the hit show "Nashville" tonight!  Tune in! Woohoo!! Can't wait to hear it... (PS- It's already available on iTunes...  Jonathan Jackson is singing it and he did a killer job.)



Midland: The song "Kiss" also happens to be on my husband's latest album called "Midland."  This album came out this week and is my favorite to date... which is kind of a big deal, considering I've been a super fan of his before we ever even dated...  That album is available through iTunes and you can go HERE for more details on how to get a physical copy... Here he is performing his version of "Kiss."


Lastly- Abi is having minor surgery tomorrow for a G-tube!!! Woohoo!!!! I've wanted the G-Tube since forever.  It will allow us to feed her liquids and supplemental foods through a tube going directly into her stomach.  This means NO TUBE GOING THROUGH HER NOSE!!! No nasty tape that gets wet and keeps me from washing her face, no worrying about her 16 inch tube getting caught on clothes or a car seat, no worrying it will get caught in her windpipe... No sticking the tube back down her nose when it comes out by accident...  The surgery is supposed to be very simple and virtually pain free.  Many kids get it done as an outpatient procedure but we'll be staying overnight since her situation is a little different. The whole procedure should be eezy-peezy... However, surgery is still surgery so please say a prayer for our little one tomorrow if you think about it...

So there you go... Kurgerland in all its glory.

Hope you're doing well!
mae mae


November 6, 2012

Update

It is 2:10am and I’m wide awake. I’ve become a regular companion of this unfortunate hour the past few weeks. Fall asleep at 11, wake up at 1, back asleep at 1:30, up again at 2:00, asleep again at 5:00, up again when the feeding pump alarm goes off at 5:30…Despite my frequent meetings with insomnia, Abiella (thank God) is typically sleeping 7-9 hours a night.  So why am I up then? Because the feeding tube is driving me crazy, that’s why.

Before we left the hospital, a nurse said to us “Keep a close eye on her at night.  If this tube gets pulled out a little and the food is still pumping through, it can go into her lungs and cause her to choke.” Hmm… is that so? Well then, I guess I won’t be getting any sleep EVER until this tube is history. Every single cough, sneeze, movement, grunt, or snort has me hopping out of bed, standing by the crib, listening for breathing, making sure the tube is still in the right place and double checking that all is well. Is this overkill? Maybe. But can I do it differently? No.

So- tonight- (this morning?) for the umpteenth morning in a row- I woke up from a noise I can’t even recall and now I’m lying awake, dogs at my feet, listening to Abi snore three feet to my left and Sara (the pup) snore three feet below me.

Am I happy? Yes.  Very. Am I tired? Uh-huh.

BUT these maddening battles with sleep are only a portion of our world.  In 2 hours I will disconnect Abi from the pole hanging above her bed, carry her on my chest to the kitchen, hit BREW on the coffee pot, and hang out with my favorite gal beside the fire…reading books, playing games, and singing songs. 

Life is good.  Very, very good…

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You know what else makes life good?  The fact that my other mama (Sean’s mom) came to visit this weekend!!! Woohoo…. 

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Meeting Abiella for the first time.
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Too beautiful.

mae mae

October 30, 2012

Feeding Tubes, Bonding, and Being Home

First: Before I get into today's post... We're thinking and praying for those affected by Sandy.  I was up all night watching the story unfold and the pictures of babies being evacuated from the hospital (due to power outage) absolutely broke me.  Having just been in the hospital with my baby for 8 days, I can't imagine the scene inside that dark hospital and the weight and worry of every family member involved in that situation.  Thankful for the spirit and bravery of those assisting during this disaster. As more and more devastating reports surface, we are praying for those who have lost so much... 

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Now... onto the regularly scheduled programming...

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Oh blog, how I have missed thee. I’ve been busy being many things… a new mom, an even newer nurse, and a really, really tired gal.

First, life here has been amazing.  Abiella is bonding with us really quickly (it seems) and she LOVES being home. It’s like she just KNEW this was her home… as soon as we put her in her crib again she just kicked and smiled.  

But before I talk about life at home, here are some pics from the hospital I never shared:

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Abi is officially obsessed with Sean playing the guitar.  (I can relate.)  Anytime she's really upset, I'll yell to Sean, "Go get the guitar."  9 times out of 10 she calms down immediately. 

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This was Abi's favorite part of the day. She loved watching the sun come in through the blinds each morning. 

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Abi's FIRST vegetable in America :) Hello, Sweet Potatoes; Abi's a big fan.

Finally, after 8 days in the hospital, we were sent home! 
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Soooo now we’re now doing a full healthcare routine at home…  What does that look like?  Well for now, it looks like a big feeding tube hanging from an IV pole above Abi’s crib. 

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We hook her into that sucker 3 times a day (and during the night) and pump necessary nutrients into her body.  When she’s not hooked up to the pump, I feed her by mouth 3 times a day too.  It’s fair to say that our entire day is scheduled around getting food into Miss Abiella’s belly… and I’m MORE THAN FINE with that.  I’ve wanted to get this baby healthy and fat since I held her for the first time 11 months ago.  THIS is a blessing…

HOWEVER, this new health care routine comes with a few unfortunate side effects, including the fact that this tube can come out by accident (and did Saturday morning) and we have to replace it (through her nose, down her throat, and into her stomach)... by ourselves. Oh my.

Thankfully we received great training at the hospital and have a nurse and doctor on-call should we need anything... 

Despite the fact that I can not WAIT until this tube is in the history books, we are THANKFUL for the tube because it is HELPING our daughter.  However, we have a doctor’s visit in 2 weeks to discuss the future of “The Tube" and my hope is that the tube's future doesn't exist. 

For now, I'm going to go have another cupcake (thank you Sara!), finish my iced coffee, and make Abiella a snack.  Peas, don't fail me now. This chick's not exactly a huge fun of green veggies... but I can relate... no garlic, no salt, no cheese?? No thank you. 

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But before I sign off for today, let me thank you from the bottom of my heart for all of your prayers, encouraging comments, and sweet emails.  I have read them over and over again during the challenging moments. They've meant so much. 

Blessings, 
mae 

October 21, 2012

Day 6

Today, I stepped outside the hospital doors for the first time (since brining Abi to her pediatrician’s appointment 6 days ago. ) For days, Sean has been saying, “You have to get out.  For your sanity, go walk outside!” But I never did… until today. This morning, I woke up with Abi at about 4:45am, by 6 am, we had met with the doctor, by 7am I was showered and feeding Abi breakfast, and at 7:15 I said, “Okay.  I’m ready. How about I go to Target?”  So Sean, cheered me on, I grabbed my wallet, kissed my baby, and headed out the door. I took my first breath of fresh air in 6 days at 8:30 am.  It was colder than I expected.  Woohoo, Fall is upon us!

Target was good and when I returned, all was well and I was glad I had gone… however… I got a taste of freedom and now I CRAVE it.  I want to leave again… but WITH ABI! (Although we remain SO THANKFUL for the assistance and health care we are receiving… we are ready to live life without 18 cables attached to our baby, the incessant beeping of a heart monitor, and the constant intake of people looking at (scaring) Miss Abiella.

But before, we leave (hopefully on Tuesday) I must share with you a few random miracles that have happened (among many) since we’ve been here. 

First- one of our nurses came in and said, “I had to come meet you.  I lived in Ghana for 2 years!”  Huh?!?  Really?!? Turned out, at the age of 16 she moved to Ghana as an exchange student, lived in a home without running water, went to public high school there, and fell so in love with the culture that she stayed an extra year.  Throughout our stay here, she has come in to our room periodically and we’ve shared stories of our beloved daughter’s birth place.  So amazing.

Second- One of our night nurse’s whom we love so much noticed we were awake in the middle of the night and leaned over to us and with a shaky voice said, “There’s such a difference in this baby already.  I’m weeping. What a miracle!”  So reassuring to see that someone else saw such a difference too!

Lastly, (are you ready for this?)  We had a different nurse come in yesterday and from the second I met her I loved her.  She was kind, fun, hilarious, and around my age.  I noticed right off the bat she was exceptionally good with Abiella.  Near the end of her shift, she came in and said, “Is Abi going to be going home with the feeding tube?”  I said, “Yes, I believe so.”  She replied, “Would you like me to start teaching you how to use it?” I quickly agreed and she told me she’d come in that evening and show me a few of the basics. So an hour or so later, she returned and as I watched what she was doing, she looked up at us and said, “I adopted a child with special needs who had to go home on a feeding tube…so I know how you’re feeling. It’ll get easier.”  Oh my gosh.  My jaw hit the floor. 

“What?!?  You did?"  She proceeded to tell me a story that was similar to ours… (adoption first, biological kids later…etc. etc.) Main difference? They adopted 3 siblings at once!  The child with special needs was suffering from seizures, vomiting, lack of mobility, and considered blind and deaf.  As she told me her story I felt as if God had sent me an angel straight into my room.  She looked over at Abi and said, “She’ll do great.  You have no idea. We were told our son would only be able to suck his thumb.  Two years later (age 4) he can roll over, see, hear, say Mama, laugh, his seizures are gone and his vomiting has ceased.”  Her attitude, her light, her joy, and her knowledge were such gifts.  She had been in our shoes… I told her, “You’re an angel! I just told Sean how we needed to meet some parents in our same position… (adopting a child with special needs) and little did I know God had already sent me someone. The very woman treating our precious daughter all day!”  Unbelievable.  She told me she wasn’t even supposed to take that shift and that she had never even worked on our floor.  Unbelievable!!!  She’s our nurse again today and I’m learning so much, gaining so much strength from her unbelievable outlook, and basking in the joy of sharing a similar experience.  Do we know if our children will ever communicate fully? No. Do we know if our children will ever walk? No. But we cheer at the victories we see.  The way she put it, “Everyone says, ‘You’re crazy. What if he can’t do this? Or he can’t do that?' And I always see the opposite, Look at what HE CAN DO! Look at what we didn’t know was possible… becoming possible!”  Such a light.  Such a gift. And such a needed blessing when our spirits were tired, jet lag was rumbling, and hospital air was stiff and stifling. What a reminder that God loves US.  Not just Abi.  But US.  When we needed a boost, he sent one before we even knew how to ask. 

Blessings :)
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mae mae